Kris Molnar

Kris’s physician spoke with numerous local surgeons, and they were all reluctant to perform surgery in such a sensitive place. At the same time, Kris reached out to the head of the West Virginia State University hospital, who she knew, and made arrangements to be admitted for testing.

After three days of testing, including a neck biopsy, the results indicated a benign vagus nerve tumor. Numerous physicians were scheduled to gather to discuss the surgical procedure, taking additional months due to busy schedules. At which time, the mass continued to grow.

Weeks later, Kris visited the otolaryngologist, who had led the surgical team. He reviewed the treatment protocols, including the need for a feeding tube. Upon immediate reflection, Kris decided it was best to do more research on her care and shared her findings with her otolaryngologist, who then asked her to consider a referral to University of Pittsburgh Medical Center (UPMC).  All were in agreement.  Health advocacy in the works…

Within days she arrived at UPMC and immediately knew she made the best decision for her treatment. The earlier diagnosis was confirmed, and she was informed that it was highly treatable. Kris then met with the lead physicians in radiation and medical oncology, who explained the treatment plan and shared that she did not qualify for a clinical trial. She then asked if she could take the drug she was interested in outside of the clinical trial. They were pleased with the question and mentioned she was only the second patient to ever ask. Since the drug was FDA approved, the next step was to check her insurance coverage. It was approved, and Kris began her chemotherapy with the inclusion of Erbitux.  Personal health advocacy again…

Kris’s treatment was very challenging. She suffered severe neck burns, made several hospital visits for transfusions, and experienced very low blood pressure. However, she remained positive, believing that the treatment would save her life. Shen was required to stay in Pittsburgh to receive care at UPMC. After two months, she was able to go home.  

“Needless to say, I was very depleted. A walk to the mailbox was a great effort and walking to my mother’s house for Mother’s Day was a goal achieved. This woman is a dogged, persevering individual supported by the best man and family,” explained Kris.

She was back to her executive position at a financial institution two months later. “I must say it took some time to regain my strength and ride my horse again but that was accomplished,” added Kris.

“In the years after, I have made annual visits to UPMC to follow up as required.  I continue to thrive. Recent visits have included visits with the Head and Neck Cancer Survivorship Clinic at UPMC where I have learned much about my continued evaluation of health as I mature.”

“Focus for me has included quarterly visits to my dentist and application of fluoride varnish on a monthly basis to maintain dental health.  I have also had my teeth bonded to protect the enamel moving forward.”

“I’ve had hearing tests and did have hearing aids, which my dog ate about a year ago.  Now I must have a new evaluation, which I have not done but will put on my schedule.  The ringing in my ears has continued but I just ignore it.”

As time has passed, she noticed that her mouth didn’t open significantly due to trismus. She signed up for physical therapy to eliminate the scar tissue. In addition, therapies included wooden sticks to stretch the opening of her mouth. Her goal was to be able to eat a hamburger, and she accomplished it. Again, health care advocacy...

Then, in August 2021, another family adventure to France was on the horizon. Several nights before departure, Kris found herself, surprisingly, on the floor beside the bed, wondering why she couldn’t get up off the floor. Doug immediately called the local EMS agency who arrived very quickly, and recommended she be life-flighted to UPMC Presbyterian Pittsburgh Hospital, hoping for an optimal outcome as it appeared she had suffered a stroke.

In Pittsburgh, she underwent procedures to place a stent in her carotid artery and to also relieve the blood clot in her brain. Kris spent a few days in ICU where all signs of her stroke were eliminated.

During discussions with physicians, Kris was informed that her stroke was caused by scar tissue created (stenosis) from cancer radiation some 14 years prior.

Once out of the hospital, Kris decided she needed to find a way to help others avoid radiation treatment-related strokes. She sent an email to Dr. Jonas Johnson at UPMC Survivorship Clinic, and he immediately communicated that they were interested in further conversations.

In the next couple months, Kris visited her radiation oncologist sharing the news of her stroke. Thanking her, they shared that many in healthcare do not consider the side effects of those living 15 years-plus after treatment. They are just now beginning to determine interim evaluations that could be done and coded for reimbursement. At least it’s a start.

There have been numerous individuals in Kris’s community who have had head and neck cancer. “I share my experience and suggested that they ask their radiation oncologist for an ultrasound to make sure they were okay,” said Kris. 

Gratefulness is contagious, and sharing hope and confirmation of life is so fulfilling to Kris.

To request Kris for your local event, please contact us at info@headandneck.org  or complete the online form.